Ep. 20: Designing Better Healthcare - Juhan Sonin (GoInvo)

Juhan Sonin, designer, researcher, and MIT lecturer. Juhan specialized in software design and system engineering. He has worked at Apple, National Center for Supercomputing Applications, Massachusetts Institute of Technology (MIT), and MITRE. I had the opportunity to record this episode in Juhan’s GoInvo studio office, where he is the company’s Creative Director. Website: https://www.goinvo.com/ WE MUST SET HEALTHCARE FREE: Opensourcehealthcare.org Udemy Blockchain/Healthcare Course ($125 off with HEALTHUNCHAINED coupon): https://www.udemy.com/blockchain-and-healthcare/?couponCOde=HEALTHUNCHAINED Show Notes •Software Design and System Engineering •Asynchronous telemedicine •People don’t really care about their health until we are unwell •Blockchain use case to access medical records and proxy it from anywhere with internet •Location of conception will be part of your life (health) data •Ownership and co-ownership models for health data •Data Use Agreements •Open Genome Project •You’ve put your data out on the internet and your genetic data is open-sourced. Have you had any unexpected consequences from that decision? •Health Data Standards •Open-source Standard Health Record: http://standardhealthrecord.org/ •Data exchange problems are not only business and technology issues but generally human issues •Determinants of Health •Robot doctors and the future of healthcare •Black-box healthcare algorithms should be •Open source is the only way for Medicine https://medium.com/@marcus_baw/open-source-is-the-only-way-for-medicine-9e698de0447e •Primary Care Manifesto •Patients’ interests in owning their own health •Favorite books: The Elements of Style by William Strunk Jr; Automating Inequality by Virginia Eubanks; Democracy in Chains by Nancy MacLean; The Color of Law by Richard Rothstein News Corner: https://hitinfrastructure.com/news/aetna-ascension-sign-on-to-healthcare-blockchain-alliance On Dec 3rd, two new organizations announced that they will be joining the Alliance to be part of it’s first pilot project which seeks to determine if applying blockchain technology can help ensure the most current information about healthcare providers is available in the provider directories maintained by health insurers. The two organizations are Aetna, one of the top 3 health insurance companies in the US with $60 billion in revenue in 2017 AND Ascension, the largest Catholic health system in the world and the largest non-profit health system in the US. To me this is really exciting news because Aetna recently merged with CVS Health making the combined provider directory information from these organizations huge.