When Luther’s daughter, Jane Lockwood, was just 5 years old, she was diagnosed with a rare and incurable form of muscular dystrophy. 

Luther and his family resolved to do something about it. During the two decades since, they founded the McColl-Lockwood Laboratory and dedicated enormous resources to creating more effective treatments for the disease to help not only Jane, but thousands of others like her. 

In this episode, Luther and Jane share their experience. Jane describes what it’s been like to live with the disease – and how it hasn’t stopped her from achieving her dream of enrolling in law school. Meanwhile, Luther gives insight to their global search for the best minds researching muscular dystrophy, and how that may be leading to new and effective treatments. 

We’re joined in this conversation by Frank’s friend Larry Powell. Larry has been an inspiration for and informal advisor to our podcast for a long time. He suggested that we feature Luther and Jane’s story, and we liked the idea so much we asked him to be a part of it. 

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