Duchenne Muscular Dystrophy, or DMD as it is commonly known, is a progressive neuromuscular disease that causes the weakening of muscles over time.
It affects almost exclusively boys, with symptoms typically appearing between the ages of one and three. In Ireland today, around 110 people are known to be living with DMD. Most of them are under the age of 18.
Fianna Fáil Senator Teresa Costello has called on the European Commission, HSE and Minister of Health to regulate the drug Givinostat here for children with DMD.
Joining Kieran to discuss is Senator Teresa Costello, as well as Úna and Eilish, both parents of children who suffer from Muscular Dystrophy.
