The heavy cost borne by the patients and their caregivers can be financially crippling and sway patients to put off treatment.
Read the article by Liu Denghui, Wang Weijia and Cai Xuejiao: https://www.caixinglobal.com/2022-01-20/in-depth-fixing-the-high-cost-of-rare-disease-treatment-in-china-101832711.html
Narrated by Nandini Venkata.
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