Palliative Care for Kidney Failure: Sam Gelfand, Kate Sciacca, and Josh Lakin
May 30, 2024
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Sam Gelfand, a dual expert in nephrology and palliative care, Kate Sciacca, a nurse practitioner with a focus on kidney treatments, and Josh Lakin, a palliative care doctor, unite to discuss innovative approaches to kidney failure. They introduce KidneyPal, which provides alternatives to traditional dialysis through conservative kidney management. The conversation highlights the importance of empowering patients with choices, addressing misconceptions about dialysis, and exploring holistic care options that enhance quality of life, while expertly managing the symptoms of kidney disease.
The Kidney Pal Service provides a holistic approach to kidney care by integrating palliative care into nephrology, addressing patient needs across all disease stages.
Effective communication around conservative kidney management is crucial, as many patients mistakenly believe that choosing not to start dialysis equates to imminent death.
Deep dives
Introduction of the Kidney Pal Service
The Kidney Pal Service, initiated in 2018 at Dana-Farber Cancer Institute and Brigham Women's Hospital, aims to address the absence of palliative care for kidney disease patients. Recognizing the need for palliative care outside of cancer diagnoses, the institution undertook a strategic planning process that led to this specialized program. This service allows for a comprehensive approach to care by embedding an interprofessional palliative care team within the nephrology division, targeting patients at various stages of kidney disease. The team includes interdisciplinary members such as nurse practitioners, social workers, and nephrologists who collaborate closely to provide holistic care.
Conservative Kidney Management vs. Dialysis
The podcast emphasizes the significance of discussions around conservative kidney management (CKM) compared to dialysis, revealing that many patients are unaware of the choice to opt for CKM. The team found that the majority of patients believe that not starting dialysis means imminent death, marking a critical misperception that their support aims to address. Effective CKM involves a team-based, individualized approach that emphasizes symptom management and proactive communication about patients' values and preferences. This shift in focus allows patients to consider KTMs as a viable alternative before being faced with the default option of dialysis.
Palliative Care's Role in Symptom Management
Symptom management is a crucial aspect of the Kidney Pal Service, as patients with kidney failure often face a high burden of symptoms regardless of treatment pathways. In conservative management, healthcare providers focus on addressing common symptoms like fatigue, pain, and dyspnea, employing both pharmacologic and non-pharmacologic strategies. For instance, using a multidisciplinary team to evaluate and track patients' symptoms helps ensure that issues such as fatigue are managed holistically, including addressing factors like sleep hygiene and mood. The team discusses the importance of adjusting treatment plans based on individual patient needs and preferences to improve overall quality of life.
Transforming Patient Conversations and Care Decisions
The podcast reveals a growing recognition among nephrologists about the value of incorporating palliative care principles into kidney disease management, facilitating more comprehensive decision-making processes. The team shares that they often engage patients in earlier conversations regarding advanced care planning and realistic expectations surrounding dialysis and CKM options. This transformation in patient communication aims to clarify the possible outcomes and to build trust between the patient and healthcare providers, ultimately allowing for better alignment of care with the patients' wishes. By normalizing discussions about end-of-life care and reflecting on quality versus quantity of life, they hope to improve the overall healthcare experience for patients with kidney disease.
The landscape of options for treating people with kidney failure is shifting. It used to be that the “only” robust option in the US was dialysis. You can listen to our prior podcast with Keren Ladin talking about patients who viewed dialysis as their only option, and structural issues that led to this point (including this takedown of for profit dialysis companies by John Oliver). One of the problems was a lack of an alternative robust option to offer patients. As one of our guests says, you have to offer them something viable as an alternative to dialysis.
Today we interviewed Sam Gelfand, dually trained in nephrology and palliative care, Kate Sciacca, a nurse practitioner (fellowship trained in palliative care), and Josh Lakin, palliative care doc, who together with a social worker and other team members started KidneyPal at DFCI/BWH, a palliative care consult service for people with advanced kidney disease. As a team, they provide a robust alternative to dialysis for patients with kidney failure: conservative kidney management.
And “conservative,” as they note, can mean not only a “conservative approach,” as in non-invasive/less aggressive, but also an effort to “conserve” what kidney function remains.
We get right down to the nitty gritty of kidney supportive care techniques they incorporate in clinic, including:
Communication about the choice between dialysis and conservative kidney management: what are the tradeoffs? Function often declines after initiating dialysis, at least among nursing home residents. Dialysis may extend life, but those “additional” days are often spent in the hospital or dialysis, away from home. Symptoms are common in both options, though more anxiety and cramping in dialysis, more pruritus and nausea in conservative kidney management..
Approaches to treating pain - the second most common symptom (!) - and the answer isn’t tramadol (or tramadon’t) - rather think buprenorphine patch or methadone, and how to dose gabapentin and pregabalin. Also, don’t count out the NSAIDS!
Our guests were deeply grateful to their colleagues Dr. Frank Brennan, Dr. Mark Brown, and clinical nurse consultant Elizabeth Josland of the renal supportive care team at St. George Hospital in Sydney, Australia (down under) for teaching them the ropes of palliative care in kidney failure. And we got to learn some new vocabulary, including the meaning of “chunder.”