Dr. Christina Downey discusses challenges faced by rheumatologists, advocacy efforts in addressing drug pricing and workforce shortages, securing funding for Pediatric Subspecialty Repayment Loan Program, and importance of advocating for rheumatology and patient care. Listeners are encouraged to get involved in ACR's advocacy efforts.
The ACR advocates for increased transparency in drug pricing to protect patients from high costs and out-of-pocket expenses.
The ACR is actively working to address workforce shortages in rheumatology and secure research funding to improve patient care and support professionals.
Deep dives
Advocacy efforts and key issues in rheumatology
Dr. Christina Downey, the chair of ACR's Government Affairs Committee, discusses the advocacy year in review and current issues in rheumatology at the ACR Convergence 2023. The Government Affairs Committee focuses on improving drug pricing, addressing workforce shortages, and mitigating burnout among rheumatologists. They create position policy statements based on member feedback to guide their advocacy efforts. Specific challenges include the lack of transparency in drug pricing, the impact of pharmacy benefit managers on costs, and Medicare reimbursement cuts. The ACR's efforts involve lobbying for legislation to increase transparency surrounding pharmacy benefit managers, advocating for increased research funding, and pushing for Medicare reimbursement tied to inflation.
Challenges in drug pricing and ACR's response
One major issue discussed is the lack of transparency in drug pricing, where pharmacy benefit managers act as intermediaries and increase costs for patients, health plans, and pharmaceutical companies. The ACR has been advocating for increased transparency to understand the reasons behind rising costs and to protect patients from high premiums and out-of-pocket expenses. This involves working with coalitions and signing letters alongside other groups to amplify the message to Congress. The ACR is actively involved in supporting legislation that calls for transparency in pharmacy benefit manager practices, as well as monitoring state-level initiatives on step therapy reform and prioritization bills.
Addressing workforce shortages and research funding
The ACR recognizes the urgent need to tackle workforce shortages in rheumatology, particularly in pediatric and adult rheumatology. To address this issue, the ACR has successfully advocated for the funding of the Pediatric Subspecialty Repayment Loan Program, encouraging pediatric rheumatologists to apply for funding. The ACR has also been instrumental in advocating for increased research funding through organizations such as NIAMS, NIH, and CDC's EarthArthritis research program. Additionally, the ACR has played a role in securing funding for research on arthritis in the Department of Defense, highlighting its impact on active duty members. The efforts to address workforce shortages and secure research funding aim to improve patient care and support rheumatology professionals.
We welcome Dr. Christina Downey back onto our show, this time LIVE from Convergence 2023! You may remember Dr. Downey from Episode 46: Empathy and Wellness , but today she comes to us in another capacity: in her continuing role as Chair of the ACR’s Government Affairs Committee! Listen in as she discusses what our collective voice in Washington has done for our patients in 2023, what are the current issues rheumatology faces “on The Hill” and lastly, what you can do to be heard! Learn more about the ACR's efforts in advocacy at: rheumatology.org/about-acr-advocacy and get involved at: rheumatology.org/get-involved
Get the Snipd podcast app
Unlock the knowledge in podcasts with the podcast player of the future.
AI-powered podcast player
Listen to all your favourite podcasts with AI-powered features
Discover highlights
Listen to the best highlights from the podcasts you love and dive into the full episode
Save any moment
Hear something you like? Tap your headphones to save it with AI-generated key takeaways
Share & Export
Send highlights to Twitter, WhatsApp or export them to Notion, Readwise & more
AI-powered podcast player
Listen to all your favourite podcasts with AI-powered features
Discover highlights
Listen to the best highlights from the podcasts you love and dive into the full episode