The Conversation Hour

Supporting families through paediatric palliative care

May 13, 2025
In this engaging discussion, Sol Kim shares her heartfelt journey as a mother navigating palliative care for her son, highlighting the invaluable support from Very Special Kids. She emphasizes the emotional complexities of dealing with life-limiting illnesses and the importance of celebrating life amidst sorrow. Ray Chamberlain reflects on the pressures faced by umpires at all levels, sharing anecdotes from his career and stressing the need for respect and support for officials. Together, they illustrate the profound impact of compassion in both palliative care and sports.
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ADVICE

Embrace Palliative Care

  • Don't be afraid of the term palliative care; it can help you handle the worst moments in life.
  • Keep hope alive and let your child guide you through treatments and difficult news.
ANECDOTE

Tay's Unique Journey

  • Tay was a unique boy who turned his disabilities into superpowers and embraced life fully despite tough treatments.
  • He connected deeply with hospital staff and found joy even during his struggles with two bone marrow transplants.
ANECDOTE

Sibling Support Importance

  • Chanel from Very Special Kids supported Sol’s daughter Leia, providing crucial sibling care during Tay’s illness.
  • This unique family-centered care helped the family cope through tough times and loss.
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