Talking Biotech with Dr. Kevin Folta cover image

Talking Biotech with Dr. Kevin Folta

A Non-Profit Biotech Model; Therapies for Rare Diseases - Dr. Ashley Winslow

Sep 9, 2023
Dr. Ashley Winslow, CEO/CSO of Odylia Therapeutics, discusses a novel non-profit model for addressing rare diseases and the approaches being designed for two rare genetic eye diseases. Topics include the challenges of developing therapies for rare diseases, the founding of a nonprofit biotech company for rare disease research, gene therapy solutions for eye disorders, and the potential of gene therapy for treating Usher syndrome.
47:12

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Podcast summary created with Snipd AI

Quick takeaways

  • Nonprofit biotechs prioritize patient care over profits, providing innovative solutions for rare diseases.
  • Gene therapies using AV technology show promise for treating vision-related disorders like Leber Congenital Amaurosis (LCA) and Usher syndrome.

Deep dives

The Challenge of Rare Diseases

Rare diseases pose challenges in recruiting study participants and generating profits for big companies due to small patient populations. Small companies can provide innovative solutions for rare diseases.

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