Navigating Challenges in Sharing Autism Information on TikTok

While I don't personally use TikTok, I am aware of the considerable influence it has across a range of topics. As many listeners can imagine, Autism is one of those topics that generates unfathomable amounts of content on the platform. 

Unlike other forms of medical and scientific dissemination, there are really no barriers to saying whatever one wants, not only on TikTok, but on any other internet-based media platforms, podcasts included of course. And as you might imagine, this brings with it lots of variability in terms of information accuracy.

Today's guests, Drs. Elisabeth Sheridan and Giacomo Vivanti, along with their colleagues Diego Aragon-Guevara and Grace Castle, took up the challenge of analyzing the accuracy of Autism-related content on TikTok. They published their results in a recent issue of the Journal of Autism and Developmental Disorders in a paper titled: The Reach and Accuracy of Information on Autism on TikTok. 

In this interview, we discuss the audience scope on TikTok - spoiler alert: it's massive, why they decided to undertake this study, how they categorized the veracity of the TikTok videos they reviewed, what type of content creators had more and less accurate videos, what were some commonalities to the inaccurate videos they surveyed, and lots more. We also spent some time talking about the reaction to this paper, which has been considerable. 

Here are the links:

• The paper itself: Aragon-Guevara, et al. (2023).
• A popular press write up of this paper in Psychology Today.
• Another interview of these authors on the Autism Science Foundation's podcast. 
• The Parenting Translator on TikTok. 
• Drs. Sheridan and Vivanti on LinkedIn. 
• The A.J. Drexel Autism Institute at Drexel University. 

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This podcast is brought to you by:

• The Michigan Autism Conference, which is taking place on October 11-13 in Kalamazoo, and online as well. We’ll hear more about this event later on in the show, but if you’re impatient like me, to go michiganautismconference.org, and use the code MAC10 to save $10 at checkout.
• The Stone Soup Conference, which is taking place on October 20th. This is an amazing event, benefitting a great cause, all for a very reasonable price. Use code PODCAST to save on your registration as well.
• Behavior University. Their mission is to provide university quality professional development for the busy Behavior Analyst. Learn about their CEU offerings, including their 8-hour Supervision Course, as well as their RBT offerings over at behavioruniversity.com/observations.