Navigating Challenges in Understanding Profound Autism and Differing Perspectives

Dr. Alycia Halladay joins we to discuss the topic of Profound Autism. If you're not familiar with Alycia's work, she is the Chief Science Officer for The Autism Science Foundation, and host of the excellent show, The ASF Weekly Science Podcast. 

In this episode, we discuss the changes in Autism diagnosis from the DSM IV to V, the Lancet Commission paper on Profound Autism, why there is a need for this distinction in the Autism spectrum, the conditions under which an individual would be classified as having Profound Autism, the estimated proportion of Autistics who have Profound Autism, the differences in the distribution of sex-based differences in Profound and Non-profound populations, person vs. identity-first language, the importance of reducing stigma for everyone with Autism, criticisms of the proposal of this category, and responses to those criticisms. Even though we packed a lot into this interview, there is way more to this conversation than we had time for, so I'd like to revisit this again sometime in the future.

In the meantime, if  you're in the New England area, consider attending The Profound Autism Summit, which is taking place on April 5th, 2024 in Burlington, Massachusetts. Alycia will be speaking at that event, and will go into even more detail than we did in this podcast. It's a multi track conference that, according to the PAS site, aims to "bring together leaders from the areas of research, medicine, treatment, advocacy, education, and human services to discuss the needs of those with Profound Autism across disciplines and throughout the lifespan."

Even though the Profound Autism Summit features talks from notable Behavior Analysts like Drs. Greg Hanley, Shanna Bahry, Peter Gerhardt, Jessica Slaton and others, it's not just an ABA conference. There will be speakers and panelists representing advocacy groups, emergency services personnel, service providers, and more (check out the entire speakers roster here). 

The PAS is right around the corner and is almost sold out, so if you're on the fence and are looking for some motivation, here it is (register your spot here!). If you can't make it, consider signing up for their mailing list, as I believe they'll be making the talks available  asynchronously some time down the road. 

• Did you know that if you use Apple Podcasts as your player, you can get transcripts to this show? See this for a tutorial.
• Register for the Profound Autism Summit!
• Hop on their 100% non-spammy email list for updates on Profound Autism.
• Session 248: A review of Autism diagnostic practices.
• Lord et al. (2021). The Lancet Commission on the future of care and clinical research in autism.
• ASF's post on the Lancet Commission paper. 
• ASF Weekly Science Podcast homepage. 
• ASF Weekly Science Podcast recommendation 1: Nobody ever talks about catatonia.
• ASF Weekly Science Podcast recommendation 2: "Emergent and Transactional," with Dr. Andrew Whitehouse. 

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• Behavior University. Their mission is to provide university quality professional development for the busy Behavior Analyst. Learn about their CEU offerings, including their brand new 8-hour Supervision Course, as well as their RBT offerings over at behavioruniversity.com/observations.