‘I’ve Got The Same Thing You Do’: Ehlers-Danlos Across Generations
Embodied
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Navigating Ehlers-Danlos Syndrome
This chapter explores the transformative journey of two individuals united by a shared diagnosis of Ehlers-Danlos Syndrome (EDS). They discuss challenges in communication, intimacy, and medical decision-making influenced by their condition, emphasizing the importance of self-advocacy and understanding in their relationships. Through personal anecdotes, they highlight the complexities of living with chronic pain and the need for a supportive, adaptive environment.
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