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How to Deal With Chronic Rare Disease
I imagine that most patients with RP probably never heard of the diagnosis before. Most certainly don't know anybody else that has a similar condition. I always suggest to the patients to have also a psychologist or somebody that they can talk to because it is very hard, not only on you, but everybody around you, right? It's your family, your friends, people at work, you know, it's very difficult, very stressful for everybody.