Marty, his brother and his dad joined diane, the dominantly inherited outsimer network. Diane represents 300 families around the world with one of the three ju mutations which cause early onset outsimers in 20 ten when marty joined them. Marty did not want to know his gene status, but marty's brother was keen to find out.
Marty Reiswig is fit and healthy, but every two weeks he is injected with the experimental drug gantenerumab and has monthly MRI scans. He submits to this because a rare genetic mutation runs in his family that predisposes them to early-onset Alzheimer’s disease.
We spoke to him about his experience on the trial, and why he chose to continue trialling the drug even after formal clinical trials were discontinued.
Produced and narrated by Lorna Stewart.
More on this story:
News Feature: Could drugs prevent Alzheimer’s? These trials aim to find out
Resources for those affected by Alzheimer's:
Alzheimer's association
Alzheimers.gov
Alzheimer's society
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