Navigating Parenthood in a Digital Age

This chapter examines the challenges of parenting a child with a rare illness, focusing on the dynamics of communication in both in-person and online contexts. It highlights the pressures of societal perceptions of motherhood, critiques unrealistic online portrayals, and explores the implications of prenatal testing technologies on personal and societal levels. Additionally, it discusses the ethical considerations of free birth, contrasting it with medically intensive pregnancies, while advocating for more equitable healthcare practices for marginalized communities.