Episode 113: Sickle Cell Series - “Double Duty: A Doctor's Story of Living with Sickle Cell Disease While Caring for Others”
The Fellow on Call: The Heme/Onc Podcast
Navigating Sickle Cell Care
This chapter explores the speaker's journey as a pediatric hematologist, focusing on the emotional and systemic challenges faced by patients with sickle cell disease. It emphasizes the crucial transition from pediatric to adult care, advocating for independence and self-management among young adults while highlighting the importance of interdisciplinary collaboration. The discussion further includes advancements in gene therapy, the complexities of patient experiences, and the broader need for systemic advocacy in addressing health disparities.
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