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577: Something Only I Can See

This American Life

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Jill's Genetic Journey

This chapter follows Jill, a college student on a quest to diagnose her undiagnosed muscle condition, which leads her to uncover a rare disorder called Emery Dreyfus Syndrome. As she navigates the complexities of medical skepticism and familial ties, Jill's determination reveals both the resilience of youth and the fragility of life intertwined with genetic disorders. Her journey not only unveils her own struggles but also prompts a deeper reflection on identity and the bonds shared with her father.

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