362: A mother’s perspective on Sarepta’s gene therapy halt
The Readout Loud
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Navigating Duchenne Muscular Dystrophy
This chapter explores a mother's heartfelt journey with her son, Cooper, who has Duchenne muscular dystrophy. It candidly discusses the emotional challenges of diagnosis, the joys of their adventurous life together, and the importance of connecting with other families for support.
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