Did you know that rocking back and forth isn’t a symptom of schizophrenia — it’s a side effect of the medication used for treatment. It’s called tardive dyskinesia, and it’s a common result of long-term use of antipsychotic medications.

The percentage of patients who will experience tardive dyskinesia ranges from 3% to as high as 68% and can have a negative impact on quality of life.

Dee Linde, who is a support group leader with the Dystonia Medical Research Foundation, joins and shares her incredible journey with tardive dystonia — a progressed form of tardive dyskinesia.

Host Rachel Star Withers, a diagnosed schizophrenic, and cohost Gabe Howard discuss the effects of tardive dyskinesia, personal stories, and ways to manage it in this episode of Inside Schizophrenia.

To learn more, visit the official episode page here.

Guest Bio

Dee Linde, MA, is a U.S. navy veteran and worked as a licensed marriage and family therapist for 15 years. Linde was diagnosed with tardive dystonia in 1997 and had deep brain stimulation (DBS) surgery in 2000. In 2002 Linde founded the DBSforDystonia Yahoo group to offer online peer support and information to those on the DBS journey. She now moderates the Dystonia & Deep Brain Stimulation Facebook group. Linde also leads the Portland, Oregon & Southwest Washington Dystonia Support Group. She has served on the Department of Defense’s Peer Reviewed Medical Research Program’s consumer reviewer panel for dystonia research applications and has testified before the Senate Defense Appropriations Subcommittee urging federal legislators to keep dystonia on the list of conditions included in the Department of Defense’s exclusive research program. Linde is a member of the Dystonia Medical Research Foundation’s Community Leadership Council, a frequent speaker at DMRF events, and a member of the Dystonia Dialogue newsletter’s editorial board.

https://dystonia-foundation.org/

Inside Schizophrenia Podcast Host

Rachel Star Withers creates videos documenting her schizophrenia, ways to manage and let others like her know they are not alone and can still live an amazing life. She has written Lil Broken Star: Understanding Schizophrenia for Kids and a tool for schizophrenics, To See in the Dark: Hallucination and Delusion Journal. Fun Fact: She has wrestled alligators.

To learn more about Rachel, please visit her website, RachelStarLive.com.

Inside Schizophrenia Co-Host

Gabe Howard is an award-winning writer and speaker who lives with bipolar disorder. He is the author of the popular book, "Mental Illness is an Asshole and other Observations," available from Amazon; signed copies are also available directly from the author.

Gabe makes his home in the suburbs of Columbus, Ohio. He lives with his supportive wife, Kendall, and a Miniature Schnauzer dog that he never wanted, but now can’t imagine life without. To learn more about Gabe, please visit his website, gabehoward.com.

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