Navigating Hypermobile Ehlers-Danlos Syndrome

In this special bonus episode, Dr. Linda Blustein (Bendy Bodies https://bit.ly/m/BendyBodies) addresses listener questions about Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders.

00:00 – Introduction
00:59 – Can PCPs diagnose hEDS without a geneticist?
03:19 – Limitations of the Beighton Score
05:40 – 2017 hEDS criteria & upcoming revisions
10:29 – How to find a knowledgeable provider
12:52 – SVT vs POTS in a patient with EDS family history
19:53 – How to ask your provider if they’re comfortable treating dysautonomia
22:17 – MTHFR variants and hEDS
29:23 – Celiac, gluten sensitivity & EDS
31:48 – Food allergy vs sensitivity testing
34:11 – Lipoedema and hypermobility
39:00 – LDN, Ketotifen, and Cromolyn
43:41 – Medication sensitivity in EDS/POTS/MCAS patients
45:47 – Wrap up and resources

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