The Importance of Knowing Where Patients Live

I think one of the issues that comes up is that it's hard to include, you know, the most affected by some of these diseases. And yet, in most lupus research studies, they represent the minority of people enrolled in these studies. So how can we begin to understand what is happening to our patients if they're not included in these research studies? They need to be included,. and I think that while there have been gross injustices that have happened, populations still do want to be a part of research. It's sort of like, you can't have a study about us without us.