Sonia Vallabh had just lost her mother to a rapid, mysterious brain disease. And then, she found out that the disease was genetic. Doctors told her there was a 50-50 chance she had inherited the same rare genetic mutation that killed her mom. Sonia tells Maya how she managed a torturous state of limbo, and how what followed led her to the cutting edge of science.

Get involved at https://www.prionalliance.org/

For a behind-the-scenes look at the show, follow @DrMayaShankar on Instagram. 

See omnystudio.com/listener for privacy information.