Developing a Patient-Reported Outcome Instrument for Assessing Renodes

This week we welcome our next guest, Dr. John D. Pauling to ‘Journals’. Dr. Pauling is the senior author of the manuscript “Assessment of the Systemic Sclerosis-Associated Raynaud’s Phenomenon Questionnaire: Item Bank and Short Form Development”, which endeavored to “develop, refine and score a novel patient-reported outcome instrument to assess the severity and impact of Raynaud’s Phenomenon (RP) in Systemic Sclerosis (SSc)”. In this episode, we discuss the challenges associated with measuring one of the most common disease manifestations of scleroderma, Raynaud’s, and how the Assessment of Systemic Sclerosis-Associated Raynaud’s Phenomenon (ASRAP) questionnaire was harmonious in the paper’s results and final conclusions.