Chronic Invalidation from the Medical Community

Do you ever feel like your immune system is working against you? You don’t know what’s wrong, no one else knows what’s wrong, you keep doing medical tests and it’s coming back normal or the pieces don’t add up.

Autistic people often experience a myriad of chronic health conditions and nervous system dysregulation that leaves us feeling terrible, overwhelmed, and with tons more questions than answers about what’s going on with our bodies.

In this episode, Patrick Casale and Dr. Megan Anna Neff, two AuDHD mental health professionals, talk with Dr. Mel Houser (she/they), an autistic family physician, about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mast cell activation syndrome (MCAS), the connection between Autism and nervous system dysregulation, the struggles with the healthcare system and getting treatment for these symptoms, and the importance of becoming a “detective in your own life.”

Top 3 reasons to listen to the entire episode:

1. Understand the role that daily experiences play in potentially triggering health conditions or pain through nervous system dysregulation.
2. Uncover the complexities of living with neuroimmune conditions like ME CFS and mast cell dysfunction.
3. Learn how to get support to address the unique challenges that neurodivergent individuals face in accessing mental health and medical care.

More about Dr. Mel Houser:

Dr. Mel Houser (she/they) is an Autistic family physician with a clinical focus on providing primary care for neurodivergent patients across the lifespan. She is the Founder and Executive Director of All Brains Belong VT, a nonprofit 501(c)(3) organization in Montpelier, Vermont that uses universal design principles to provide neurodiversity-affirming medical care, social connection opportunities for all ages, and neurodiversity-related educational training. At age 37, Dr. Houser was diagnosed as autistic, ADHD, dyspraxic, dyslexic, and dyscalculic. She is also the parent of an autistic 6-year-old, who is her guru of so many keys to the universe.

• Website: https://allbrainsbelong.org 
• Instagram: @allbrainsbelongvt

Check out All Brains Belong’s new project: Everything is Connected to Everything: Improving the Healthcare of Autistic & ADHD Adults provides health education resources to support people with this constellation of intertwined conditions, as well as strategies for discussing the project with medical providers. There is also a Clinician Guide with a combination of evidence-based practice and the lived experiences of more than 100 Autistic and ADHD community members.

Here's the link to the project: https://allbrainsbelong.org/all-the-things

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✨ The Autistic Burnout Workbook:

I'm Dr. Megan Anna Neff, owner of Neurodivergent Insights, and I'm excited to announce the release of my book, The Autistic Burnout Workbook. I'm running a special deal for those who support my work. After you order, you will get a coupon code that you can use toward our store for the same amount. For example, the workbook costs $18.99, so after purchase, you'd get a credit of $18.99 to use in our digital shop or in our Etsy shop, which gets you another digital workbook of your choosing for free. This is technically a pre-order promotion that was originally set to end on March 10th, but for listeners of the podcast, I'm going to extend this deal, so if you buy the book in the next month, you can also redeem this special. Thank you for supporting my work. It means so much to me and I hope that you will find this a helpful resource for you as you continue to build a life that is a bit more resilient to autistic burnout.

• Use the following link to grab this offer: neurodivergentinsights.notion.site/17ea17a4bb8b8034ab2bf9b03c560a64
• After this deal ends, you can use this link to purchase this workbook: simonandschuster.com/books/The-Autistic-Burnout-Workbook/Megan-Anna-Neff/9781507223062

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💬 Join Divergent Conversations Underground

Divergent Conversations Underground is a space for messy conversations, real connection, and unfinished thoughts in a neurodivergent-affirming community. If you’d like to go deeper with us into more nuanced, searching conversations, join here: divergentconversations.substack.com

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Mentioned in this episode:

The Autistic Burnout Workbook

I'm Dr. Megan Anna Neff, owner of Neurodivergent Insights, and I'm excited to announce the release of my book, The Autistic Burnout Workbook. I'm running a special deal for those who support my work. After you order, you will get a coupon code that you can use toward our store for the same amount. For example, the workbook costs $18.99, so after purchase, you'd get a credit of $18.99 to use in our digital shop or in our Etsy shop, which gets you another digital workbook of your choosing for free. This is technically a pre-order promotion that was originally set to end on March 10th, but for listeners of the podcast, I'm going to extend this deal, so if you buy the book in the next month, you can also redeem this special. Thank you for supporting my work. It means so much to me and I hope that you will find this a helpful resource for you as you continue to build a life that is a bit more resilient to autistic burnout. Use the following link to grab this offer: https://neurodivergentinsights.notion.site/17ea17a4bb8b8034ab2bf9b03c560a64 After this deal ends, you can use this link to purchase this workbook: https://www.simonandschuster.com/books/The-Autistic-Burnout-Workbook/Megan-Anna-Neff/9781507223062