‘I’ve Got The Same Thing You Do’: Ehlers-Danlos Across Generations
Embodied
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Living with Ehlers-Danlos Syndrome
This chapter explores the daily realities faced by individuals living with Ehlers-Danlos Syndrome (EDS), detailing the complexities of symptom management and the long journey to diagnosis. Through personal anecdotes, the speaker reveals the interconnectedness of various health issues and the emotional toll of living with a chronic condition. It also highlights the familial experiences and varying paths to understanding one's diagnosis within the context of a genetic disorder.
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