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Understanding the Complexity of ME/CFS and Its Impact on Individuals
Exploring the complexities of ME/CFS, including its triggers, the hallmark symptom of post-exertional malaise, and the impact of societal factors on individuals with the condition.
Do you ever feel like your immune system is working against you? You don’t know what’s wrong, no one else knows what’s wrong, you keep doing medical tests and it’s coming back normal or the pieces don’t add up.
Autistic people often experience a myriad of chronic health conditions and nervous system dysregulation that leaves us feeling terrible, overwhelmed, and with tons more questions than answers about what’s going on with our bodies.
In this episode, Patrick Casale and Dr. Megan Anna Neff, two AuDHD mental health professionals, talk with Dr. Mel Houser (she/they), an autistic family physician, about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), mast cell activation syndrome (MCAS), the connection between Autism and nervous system dysregulation, the struggles with the healthcare system and getting treatment for these symptoms, and the importance of becoming a “detective in your own life.”
Top 3 reasons to listen to the entire episode:
More about Dr. Mel Houser:
Dr. Mel Houser (she/they) is an Autistic family physician with a clinical focus on providing primary care for neurodivergent patients across the lifespan. She is the Founder and Executive Director of All Brains Belong VT, a nonprofit 501(c)(3) organization in Montpelier, Vermont that uses universal design principles to provide neurodiversity-affirming medical care, social connection opportunities for all ages, and neurodiversity-related educational training. At age 37, Dr. Houser was diagnosed as autistic, ADHD, dyspraxic, dyslexic, and dyscalculic. She is also the parent of an autistic 6-year-old, who is her guru of so many keys to the universe.
Check out All Brains Belong’s new project: Everything is Connected to Everything: Improving the Healthcare of Autistic & ADHD Adults provides health education resources to support people with this constellation of intertwined conditions, as well as strategies for discussing the project with medical providers. There is also a Clinician Guide with a combination of evidence-based practice and the lived experiences of more than 100 Autistic and ADHD community members.
Here's the link to the project: https://allbrainsbelong.org/all-the-things
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🎙️Listen to more episodes of the Divergent Conversations Podcast here
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Mentioned in this episode:
Hurricane Relief for WNC communities
This money will go to nonprofits who are boots on the ground. It will go to struggling individuals who do not have enough money for gas to get out, or who do not have enough money to provide their basic needs right now. Donate to Patrick's GoFundMe to help provide urgent aid for WNC communities affected by Hurricane Helene. Visit: atppod.com/wnc
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