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New Era for Health Data: Secondary Use of Data in the EHDS and DGA

Ars Boni

CHAPTER

Building Trust in Health Data Collaboration

This chapter highlights the critical need for understanding and collaboration in health data sharing, particularly in pediatric oncology. It addresses the historical challenges of siloed data, public skepticism following the COVID crisis, and the importance of transparency and communication in building trust. The discussion emphasizes the role of younger generations in fostering a culture of openness and the necessity for innovative approaches to enhance public engagement with health data initiatives.

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