Home Testing for POTS Diagnosis

In this compelling episode of the Bendy Bodies Podcast, Dr. Linda Bluestein is joined by her longtime mentor and internationally respected EDS expert, Dr. Pradeep Chopra. Together, they tackle some of the most frustrating—and frequently misunderstood—questions surrounding hypermobile Ehlers-Danlos Syndrome (hEDS). From major flaws in the 2017 diagnostic criteria to the hidden surgical risks that could lead to serious complications like CCI (craniocervical instability), this conversation dives deep into clinical insights and lived experience. Listeners will also hear the surprising story of how Dr. Chopra helped inspire Dr. Bluestein to open her own practice. Whether you're a patient, parent, or provider, this episode just might change how you see joint hypermobility and connective tissue disorders forever.

Takeaways

• Why men and boys may be getting overlooked by the current EDS diagnostic model

• The difference between dislocations and subluxations—and why that matters

• A surprising source of CCI: what your dentist, surgeon, and anesthesiologist may not know

• The 2017 criteria: well-meaning, but are they dangerously outdated?

• What every hypermobile patient should bring to their next surgery (yes, it’s a hack)

Want to follow along? Find the episode transcript here.

References:

Episode 70: https://youtu.be/BoRyQh12X2c

Episode 71: https://youtu.be/yDT3JTzfiJk

Episode 72: https://youtu.be/CYhnKkVjIxM

Episode 73: https://youtu.be/2OxtZGNswfo

Episode 77: https://youtu.be/d9A1aJB5GRo

Episode 151: https://youtu.be/ho0rRcjUobI

Perioperative Care in Patients with EDS by Linda Bluestein & Pradeep Chopra: https://www.scirp.org/journal/paperinformation?paperid=97524

Diagnostic Criteria: https://www.bendybodiespodcast.com/p/diagnostic-criteria-checklist/

The Incidence of Misdiagnosis in Patients with EDS: https://www.mdpi.com/2227-9067/12/6/698

Living Well with Orthostatic Intolerance by Peter C. Rowe: https://www.amazon.com/shop/hypermobilitymd/list/2LQLPARJY3CDS?linkCode=sl2&tag=onamzlindablu-20&ref_=aip_sf_list_spv_ofs_mixed_d

2023 Diagnostic Framework: https://www.ehlers-danlos.com/diagnosis/new-diagnostic-framework-for-pediatric-joint-hypermobility-v2/

Want more Dr. Pradeep Chopra? 

Website: https://www.painri.com/

Contact Dr. Chopra’s Office: snapa102@gmail.com

Want more Dr. Linda Bluestein, MD?

Website:  ⁠⁠https://www.hypermobilitymd.com/⁠⁠.

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Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

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YOUR bendy body is our highest priority!

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