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Legacy of Henrietta Lacks and Ethical Implications
This chapter reflects on the legacy of Deborah Lacks and the recognition of Henrietta Lacks following her death, catalyzed by Rebecca Skloot's impactful book. It discusses the ethical ramifications of using Henrietta's cells in research without family consent, emphasizing privacy concerns amid advancements in genetic data. The chapter culminates in a pivotal meeting between the Lacks family and NIH representatives, where they advocate for cautious management of genetic information to protect their legacy and personal privacy.