How to Tell When We Will Die

Book • 2024
Johanna Hedva's "How to Tell When We Will Die" is a collection of essays exploring disability, pain, and doom through a personal and theoretical lens.

The book delves into Hedva's experiences with chronic illness and a debilitating spinal injury, challenging conventional understandings of care and illness.

Hedva critiques ableism within healthcare systems and society, offering a radical reimagining of care and pain as symbiotic aspects of life.

The essays weave together personal narratives with theoretical discussions, encompassing topics such as kink, mysticism, and the color yellow.

The book ultimately advocates for a more complex and nuanced understanding of disability, moving beyond simplistic narratives of empowerment.

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